Welcome to my little blog all about raising a child with Autism and raising awareness

My son Connor was diagnosed with Autism at age 3. Now, at age 5 the diagnosis clearly takes a back seat to his fantastic personality. His sense of humor breaks through the Autism that has robbed him of his ability to get a grasp on other emotions that come naturally to the typical child. This blog is about one Moms perspective. The ups, downs, fears, joys and hopes that I and so many other Moms and Dads have from day to day when you have a child with Autism. So... read and learn a little, laugh a little, maybe even cry a little, hope a little and shout out with joy along with me!



Saturday, April 30, 2011

Advocacy As We Know It

When Connor was first diagnosed, I read a ton of information. One of the common phrases I ran across was "As a parent, you are your child's best advocate".  Well, I knew the basic definition of advocacy, but I had no idea how it applied to me. Things were fairly simple and ran smoothly in the beginning so there were really no battles to fight, no one to "enlighten".  The same month that Connor was diagnosed, a couple of parents from my sons school encouraged parents to join them for the local Autism Speaks Walk.  I couldn't bear to participate. You see, if we walked I would have had to admit to myself that he was autistic and my dreams for Connor were not what they used to be. At the time, that was as scary as looking the devil right in the eyes. "Maybe next year." I said and made our excuses.  This past year I stumbled into being team captain for my sons school team. I organized, printed flyers, raised money and said "yea team" periodically. We walked the walk, raised more money that I would have dared hoped and had more team members than I would ever have counted on. My friends, it felt good, REALLY good. I learned something very important at that walk. When your child and family are living with autism (which is neither curable and in a lot of cases, you don't even see it in a child) it is pure pleasure to feel as if there is something you can fix. Not only can I advocate for my child, but for other children as well. This is just one of the ways I have found to date to advocate for Connor.  Will I walk again this year? You bet! Heck, I may even jog....;)

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